It's now the year 2013. And this year feels like a momentous year.
The reason? Well unbeknown to me, all of last year I was waiting. I was waiting for my second and final dose of the Big A. I didn't realise that I felt like I was carrying a weight. My life felt on hold until I had the treatment. And now I have had it. And I feel free.
Weirdly it feels a little scary to be free and not having the excuse of an upcoming treatment to blame my woes and my reluctance and my hesitancy on.
It feels a bit like I am leaving home for the first time with the MS nurse becoming my mother patting me on the head and saying: "Off you go child, make your way. You father (neurologist) and I have provided you with everything we can. Now it is your turn."
I admit I rebelled in the first few weeks after the second Big A. I became a petulant child and took delight in telling anyone and everyone how hard life was for me. Slamming the fridge door in a Kevin-the-teenager kind of way grunting: "It's so UNFAIR!"
Shocked family and friends who I have always shielded from the real truth of how I feel about having MS were gobsmacked at the venomous truth which I answered their well meaning questions on how I was feeling that day.
And then all of a sudden and with considerable relief, I felt calm again.
I disliked the rage and the frustration and the ball of fury which had taken over my being.
I'm now back to being me.
But the anxiety lingers about the future. I realise this is because I have focused only on getting the second dose of the Big A and haven't really thought further than that.
So new year and new start.
I've been given a chance at a relatively-free MS life so I need to grasp it and crack on. I've got to make the most of this thing.
And I am going to.
Can alemtuzumab help keep Multiple Sclerosis at bay? Sian Gwilym records her experience of it.
Showing posts with label Anger. Show all posts
Showing posts with label Anger. Show all posts
Monday, 7 January 2013
Monday, 19 November 2012
Day three after round two
This weekend has been a mixture of feeling pretty weak and pathetic along with the continuation of the MS symptoms that have re-emerged and an agonising and relentless feeling of anger.
I am raging at the world.
Feelings of self-pity and 'poor me' wrack my mind and I am so bloody cross at everything.
Every little thing feels like a slight and to those poor souls - family and friends who I love dearly - who are just getting on with their lives and haven't been in touch to see how I am, well I'm afraid you have borne the brunt of my wrath.
If it is any consolation, I know I am being unreasonable and I also know that my anger is misdirected. But bear with me because at the moment, try as I might, I can't help it. I will sort my head out soon I promise. Normal service will resume soon.
I just need some sympathy at the moment. I don't want to be strong. I want people to see I need a bit of TLC. Just for a bit. Just an acknowledgement would suffice.
Boo hoo hoo!
The depth of my self indulgence knows no bounds.
Physically, I feel stronger than I did yesterday but I think a fair description of how I feel is: "Strength of the louse".
Standing up for too long make me feel light headed. And I keep falling asleep at the drop of a hat.
The scorched cheek syndrome has thankfully calmed down and yesterday I only took one anti-histimin and today (so far) none. So we are on the road to recovery.
My appetite is still on over-drive which I'm blaming on the steroids but if I'm perfectly truthful is probably because I am feeling blue. I wish I was one of those people, who in times of trauma forgets to eat. Ha! If only. I have the opposite. In crisis? Reach for the crisps. Feeling low? Swallow back that chocolate. I'm like a cliche but hey, it's my cliche so I'm gonna embrace it.
And on that note, I can hear the toaster so I'm going sign off. I've got to keep my energy up after all.
PS. I have a new follower on Twitter. They make walking sticks. Funky walking sticks I may add but walking sticks all the same. I'm hoping I will never have to use their service.
I am raging at the world.
Feelings of self-pity and 'poor me' wrack my mind and I am so bloody cross at everything.
Every little thing feels like a slight and to those poor souls - family and friends who I love dearly - who are just getting on with their lives and haven't been in touch to see how I am, well I'm afraid you have borne the brunt of my wrath.
If it is any consolation, I know I am being unreasonable and I also know that my anger is misdirected. But bear with me because at the moment, try as I might, I can't help it. I will sort my head out soon I promise. Normal service will resume soon.
I just need some sympathy at the moment. I don't want to be strong. I want people to see I need a bit of TLC. Just for a bit. Just an acknowledgement would suffice.
Boo hoo hoo!
The depth of my self indulgence knows no bounds.
Physically, I feel stronger than I did yesterday but I think a fair description of how I feel is: "Strength of the louse".
Standing up for too long make me feel light headed. And I keep falling asleep at the drop of a hat.
The scorched cheek syndrome has thankfully calmed down and yesterday I only took one anti-histimin and today (so far) none. So we are on the road to recovery.
My appetite is still on over-drive which I'm blaming on the steroids but if I'm perfectly truthful is probably because I am feeling blue. I wish I was one of those people, who in times of trauma forgets to eat. Ha! If only. I have the opposite. In crisis? Reach for the crisps. Feeling low? Swallow back that chocolate. I'm like a cliche but hey, it's my cliche so I'm gonna embrace it.
And on that note, I can hear the toaster so I'm going sign off. I've got to keep my energy up after all.
PS. I have a new follower on Twitter. They make walking sticks. Funky walking sticks I may add but walking sticks all the same. I'm hoping I will never have to use their service.
Subscribe to:
Posts (Atom)