Wednesday 3 April 2013

Handbag vodka and other things

I am ashamed at how long it has been since I last blogged. More so after my first 'group' meeting with some MSers last night.

I had persuaded myself that now I have admitted my MS status to myself and anyone else who wants to listen it was time to go public with the MS crowd.

And so it was that I ventured into town on a school night and was confronted by a gang of giggly, handbag-vodka swilling, funny and overall nice bunch of people in a Cuban-themed bar in the middle of Cardiff.

It was nice and strange all rolled into one. Nice because these people were friendly - each varying in degrees of gregariousness. They were welcoming and kind and just an all around nice gang.

But it was strange too because on the face of it, to a complete random person who knew no better, we were a gang of mates meeting up and loudly laughing (and laughing and laughing some more). It would have looked like there was nothing unique about us apart from being a bit tipsy (which in a couple of cases was spot on but in a couple of other cases was actually a balance issue) and we would have looked like we were all old friends instead of the reality of us being complete strangers to one another with not a great deal in common apart from fighting the MS monster which was flummoxing each and every one of us often in totally different ways.

It was humbling and interesting hearing snippets of how these people were coping with MS. Don't misunderstand me - this was not a night of soul baring about MS. Nor was it one full of 'woe is me'. It was a night meeting people with a shared interest but not one where our shared interest was dissected to within an inch of its life. Yes there was chat about MS and about treatments and everything connected but it was also a night of sharing nachos and avoiding getting photographed by the keen phone-camera snapper in the group!

In other news, I went back to work in February  It took longer than I had expected to get over round two of the Big A. For lots of reasons really including feeling the need to lick the emotional wounds MS dished out and generally not feeling physically ready to get back into full time work. But I'm back now and things are going well. My baby turned from a sweet smiling lovable little soul into a two year old with an independent streak and a determination (and a scream to go with it) to do things his own way.

My life seems normal at the moment. MS is keeping its ugly head down and so far the Big A appears to have thwarted any attempts by my monster to re-emerge.
I do get floored by fatigue by the end of the week (despite me changing from working shifts to a 9-5 day) and am often forced to spend my weekends on a big rest which is frustrating and guilt inducing but overall, things are going okay and I feel positive.
Life is good. Long may it continue.

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